The human body is a complex landscape, and that landscape is made up of countless, invisible connections. Without those connections––whether they’re neurological (like synapses in your brain), vascular (part of your veins or arteries), or musculoskeletal (think joints and ligaments)––we would be a collection of different parts, rather than a single, unified body.

Ehlers Danlos Syndrome, or EDS for short, is one of these disorders. It occupies a strange intersection, and it can be described as “rare but not uncommon” as far as genetic diseases go. It is misunderstood both within and without the medical field, and this is partly because it is both incurable and difficult to diagnose.

So, what exactly is EDS? How is it managed, and how do you know if you ought to seek a possible diagnosis? 

In honor of national EDS day (January 31), and our partners at The Fem Word and Restore Motion are here to inform, educate, and explore the little-known world of Ehlers Danlos Syndrome and its many faces.

Bent Out of Shape––The What, Why, & Who of EDS and hEDS

Ehlers-Danlos Syndrome is part of a group of disorders known as the hypermobility spectrum disorders. To describe these disorders in layman’s terms, imagine you’re looking at a picket fence. Continue reading →